Your Visit.
Your Voice.
Being diagnosed and living with ITP can be challenging. While your doctor is your most important resource for managing your condition and treatment, you may leave your doctor’s office feeling like you didn’t get what you needed or that you didn’t tell your doctor what you wanted to say.
Your Visit. Your Voice. is a program to help improve your ability to have more meaningful conversations with your doctor. This includes identifying your communication challenges and demonstrating simple and practical communication skills, called LEAPS, that you can use during your next visit.
Watch the Introduction to LEAPS video to learn more about communication skills that may be helpful to you.
Let's Get Started
Are you a:
Patient
Care Partner
Are you a care partner? Select the Care Partner button to hear stories from 2 care partners: One caring for a patient
recently diagnosed with ITP and the other caring for a patient who has been living with ITP for
Choose a Backstory
Select the patient whose ITP story you relate with the most
to view them demonstrating the LEAPS communication skills.
Patient Backstory: Lily
Lily was just diagnosed with ITP. Listen to Lily’s story.
Patient Backstory: Olsen
Olsen has been living with ITP for
Your Visit. Your Voice.
Skills Summary Sheet
Provides an overview of
communication skills that you
can use during your next visit.
Answer Questions and
View Your Skills Videos
Take a moment to think about a medical visit that did not go as well as you wanted. Answer the following questions about those communication challenges and view the LEAPS communication skills–building videos that you can use during your next visit.
Time for Activity: 5 minutes.
1 The doctor did not explain my medical problem in a way I understood.
2 The doctor used confusing medical terms.
3 I forgot or did not feel comfortable asking the doctor questions.
4 I could not remember all the things I was supposed to do after leaving my medical visit.
5 The doctor did not have a good understanding of me as a person.
6 The doctor was not aware of what I know or think about my medical problem and symptoms.
7 The doctor misunderstood something I said.
8 The doctor did not consider difficulties I had following treatment recommendations.
9 The doctor did not focus on helping me identify workable ways to make changes in my everyday habits.
10 It was not easy to ask for details or express doubts about the tests or treatments the doctor recommended.
11 The doctor did not address the problems I most wanted to discuss.
12 The doctor did not discuss treatment risks, benefits, or alternatives with me.
13 The doctor did not effectively address my fears or concerns.
Putting What You Learned Into Practice
Practice Worksheet
Now that you have watched your communication skills–building videos, use this worksheet to plan how you will use each skill during your next office visit.
Click Here For Your Practice Worksheet
Putting What
You Learned
Into Practice
Now that you have watched your communication skills–building videos, you can print this worksheet to write in the spaces below how you will use each skill during your next visit.
Check your understanding by putting what the doctor said in your own words
Ask for a clear explanation
Prepare questions before the visit and be sure to ask them
Take notes and summarize what you've heard
Tell the doctor about your values and preferences for care
Share your perspective on your health problems and concerns
Check that the doctor clearly understood the key things that you said
Identify and talk about treatment and self-care challenges
Brainstorm and problem-solve with the doctor to come up with a plan
Ask follow-up questions about tests, medications, and lifestyle recommendations
Set an agenda for the visit and decide what is most important for you to discuss
Actively participate in treatment decisions
Talk openly with the doctor about any concerns or worries
Answer Questions and
View Your Skills Videos
Take a moment to think about a medical visit that did not go as well as you wanted. Answer the following questions about those communication challenges and view the LEAPS communication skills–building videos that you can use during your next visit.
Time for Activity: 5 minutes.
1 The doctor did not explain my medical problem in a way I understood.
2 The doctor used confusing medical terms.
3 I forgot or did not feel comfortable asking the doctor questions.
4 I could not remember all the things I was supposed to do after leaving my medical visit.
5 The doctor did not have a good understanding of me as a person.
6 The doctor was not aware of what I know or think about my medical problem and symptoms.
7 The doctor misunderstood something I said.
8 The doctor did not consider difficulties I had following treatment recommendations.
9 The doctor did not focus on helping me identify workable ways to make changes in my everyday habits.
10 It was not easy to ask for details or express doubts about the tests or treatments the doctor recommended.
11 The doctor did not address the problems I most wanted to discuss.
12 The doctor did not discuss treatment risks, benefits, or alternatives with me.
13 The doctor did not effectively address my fears or concerns.
Putting What You Learned Into Practice
Practice Worksheet
Now that you have watched your communication skills–building videos, use this worksheet to plan how you will use each skill during your next office visit.
Click Here For Your Practice Worksheet
Putting What
You Learned
Into Practice
Now that you have watched your communication skills–building videos, you can print this worksheet to write in the spaces below how you will use each skill during your next visit.
Check your understanding by putting what the doctor said in your own words
Ask for a clear explanation
Prepare questions before the visit and be sure to ask them
Take notes and summarize what you've heard
Tell the doctor about your values and preferences for care
Share your perspective on your health problems and concerns
Check that the doctor clearly understood the key things that you said
Identify and talk about treatment and self-care challenges
Brainstorm and problem-solve with the doctor to come up with a plan
Ask follow-up questions about tests, medications, and lifestyle recommendations
Set an agenda for the visit and decide what is most important for you to discuss
Actively participate in treatment decisions
Talk openly with the doctor about any concerns or worries
Check your understanding by putting what the doctor said in your own words
Ask for a clear explanation
Prepare questions before the visit and be sure to ask them
Take notes and summarize what you've heard
Tell the doctor about your values and preferences for care
Share your perspective on your health problems and concerns
Check that the doctor clearly understood the key things that you said
Identify and talk about treatment and self-care challenges
Brainstorm and problem-solve with the doctor to come up with a plan
Ask follow-up questions about tests, medications, and lifestyle recommendations
Set an agenda for the visit and decide what is most important for you to discuss
Actively participate in treatment decisions
Talk openly with the doctor about any concerns or worries
Answer Questions and
View Your Skills Videos
Take a moment to think about a medical visit that did not go as well as you wanted. Answer the following questions about those communication challenges and view the LEAPS communication skills–building videos that you can use during your next visit.
Time for Activity: 5 minutes.
1 The doctor did not explain the patient’s medical problem in a way I understood.
2 The doctor used confusing medical terms.
3 The patient forgot or did not feel comfortable asking the doctor questions.
4 I could not remember all the things the patient was supposed to do after leaving the medical visit.
5 The doctor did not have a good understanding of the patient as a person.
6 The doctor was not aware of what you know or think about the patient’s medical problem and symptoms.
7 The doctor misunderstood something the patient said.
8 The doctor did not consider difficulties the patient had following treatment recommendations.
9 The doctor did not focus on helping the patient identify workable ways to make changes in their everyday habits.
10 It was not easy to ask for details or express doubts about the tests or treatments that the doctor recommended.
11 The doctor did not address the problems the patient most wanted to discuss.
12 The doctor did not discuss treatment risks, benefits, or alternatives with the patient.
13 The doctor did not effectively address the patient’s fears and concerns.
Putting What You Learned Into Practice
Practice Worksheet
Now that you have watched your communication skills–building videos, use this worksheet to plan how you will use each skill during your next office visit.
Click Here For Your Practice Worksheet
Putting What
You Learned
Into Practice
Now that you have watched your communication skills–building videos, use this worksheet to write in the spaces below how you will use each skill during your next visit with your friend or loved one with ITP.
Check your understanding by putting what the doctor said in your own words.
Ask for a clear explanation.
Encourage and remind the patient to ask questions.
Take notes and summarize what you've heard .
Tell the doctor about the patient’s values and preferences for care.
Share your perspective on the patient’s health problems and concerns.
Check that the doctor clearly understood the key things you and the patient said.
Help and encourage the patient to talk about treatment and self-care challenges.
Help and encourage the patient to brainstorm and problem-solve with the doctor to come up with a plan.
Ask questions and encourage the patient to ask questions about tests, medications, and lifestyle recommendations.
Help and encourage the patient to set an agenda for the visit and decide what is most important for you to discuss.
Help and encourage the patient to actively participate in treatment decisions.
Encourage the patient to openly discuss with the doctor any concerns, worries, and discuss your own concerns.
Check your understanding by putting what the doctor said in your own words.
Ask for a clear explanation.
Encourage and remind the patient to ask questions.
Take notes and summarize what you've heard .
Tell the doctor about the patient’s values and preferences for care.
Share your perspective on the patient’s health problems and concerns.
Check that the doctor clearly understood the key things you and the patient said.
Help and encourage the patient to talk about treatment and self-care challenges.
Help and encourage the patient to brainstorm and problem-solve with the doctor to come up with a plan.
Ask questions and encourage the patient to ask questions about tests, medications, and lifestyle recommendations.
Help and encourage the patient to set an agenda for the visit and decide what is most important for you to discuss.
Help and encourage the patient to actively participate in treatment decisions.
Encourage the patient to openly discuss with the doctor any concerns, worries, and discuss your own concerns.
Answer Questions and
View Your Skills Videos
Take a moment to think about a medical visit that did not go as well as you wanted. Answer the following questions about those communication challenges and view the LEAPS communication skills–building videos that you can use during your next visit.
Time for Activity: 5 minutes.
1 The doctor did not explain the patient’s medical problem in a way I understood.
2 The doctor used confusing medical terms.
3 The patient forgot or did not feel comfortable asking the doctor questions.
4 I could not remember all the things the patient was supposed to do after leaving the medical visit.
5 The doctor did not have a good understanding of the patient as a person.
6 The doctor was not aware of what you know or think about the patient’s medical problem and symptoms.
7 The doctor misunderstood something the patient said.
8 The doctor did not consider difficulties the patient had following treatment recommendations.
9 The doctor did not focus on helping the patient identify workable ways to make changes in their everyday habits.
10 It was not easy to ask for details or express doubts about the tests or treatments that the doctor recommended.
11 The doctor did not address the problems the patient most wanted to discuss.
12 The doctor did not discuss treatment risks, benefits, or alternatives with the patient.
13 The doctor did not effectively address the patient’s fears and concerns.
Putting What You Learned Into Practice
Practice Worksheet
Now that you have watched your communication skills–building videos, use this worksheet to plan how you will use each skill during your next office visit.
Click Here For Your Practice Worksheet
Putting What
You Learned
Into Practice
Now that you have watched your communication skills–building videos, use this worksheet to write in the spaces below how you will use each skill during your next visit with your friend or loved one with ITP.
Check your understanding by putting what the doctor said in your own words.
Ask for a clear explanation.
Encourage and remind the patient to ask questions.
Take notes and summarize what you've heard .
Tell the doctor about the patient’s values and preferences for care.
Share your perspective on the patient’s health problems and concerns.
Check that the doctor clearly understood the key things you and the patient said.
Help and encourage the patient to talk about treatment and self-care challenges.
Help and encourage the patient to brainstorm and problem-solve with the doctor to come up with a plan.
Ask questions and encourage the patient to ask questions about tests, medications, and lifestyle recommendations.
Help and encourage the patient to set an agenda for the visit and decide what is most important for you to discuss.
Help and encourage the patient to actively participate in treatment decisions.
Encourage the patient to openly discuss with the doctor any concerns, worries, and discuss your own concerns.
Check your understanding by putting what the doctor said in your own words.
Ask for a clear explanation.
Encourage and remind the patient to ask questions.
Take notes and summarize what you've heard .
Tell the doctor about the patient’s values and preferences for care.
Share your perspective on the patient’s health problems and concerns.
Check that the doctor clearly understood the key things you and the patient said.
Help and encourage the patient to talk about treatment and self-care challenges.
Help and encourage the patient to brainstorm and problem-solve with the doctor to come up with a plan.
Ask questions and encourage the patient to ask questions about tests, medications, and lifestyle recommendations.
Help and encourage the patient to set an agenda for the visit and decide what is most important for you to discuss.
Help and encourage the patient to actively participate in treatment decisions.
Encourage the patient to openly discuss with the doctor any concerns, worries, and discuss your own concerns.
